The Perspectives of People with Dementia (eBook, ePUB)

Research Methods and Motivations
Redaktion: Wilkinson, Heather

• Format: ePub

Produktbeschreibung

People with dementia have often played a passive role in the investigation of their condition. The contributors to this book look at ways of redressing the balance and involving them in the research process. They describe the skills that researchers and care staff need, and the methods they can use, when seeking to draw out and validate the views of people with dementia successfully, and discuss the ways in which such views can be included in debates about dementia methodology and policy.

The book focuses on a number of projects which have taken different approaches to working with people with dementia in research, including a chapter examining the difficult process of interviewing people with dementia whose first language is not English and a chapter describing a project which encourages people with dementia to participate in the analysis of the research findings. This varied and innovative book will help those in the fields of health and social policy, dementia research and dementia care to hear the voices of people with dementia more clearly, and to include their opinions more effectively in the provision of services.

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Produktdetails

• Verlag: Jessica Kingsley Publishers
• Seitenzahl: 256
• Erscheinungstermin: 15. November 2001
• Englisch
• ISBN-13: 9781846423109
• Artikelnr.: 41510872

Autorenporträt

Heather Wilkinson is a research fellow at the Centre for Social Research on Dementia at the University of Stirling. She is involved in a number of different research projects and has organised conferences on the subjects of dementia care and research.

Inhaltsangabe

Part I: Ethical and practical issues of involvement. 1. Introduction: Including people with dementia in research: Methods and motivation
Heather Wilkinson
University of Stirling 2. Getting down to brass tacks: a discussion of data collection with people with dementia
Charlotte L. Clarke
University of Northumbria at Newcastle and John Keady
University of Wales. 3. Ethical issues in dementia care research
Helen Bartlett and Wendy Martin
Oxford Dementia Centre
Oxford Brookes University. 4. Including the perspectives of older people in institutional care during the consent process
Gill Hubbard
University of Stirling
Murna Downs
Bradford University and Susan Tester
University of Stirling. 5. Including people with dementia: advisory networks and user panels
Lynne Corner
University of Newcastle. Part II: The views of people with dementia. 6. Should people with Alzheimer's Disease take part in research? Elaine Robinson. 7. Did research alter anything? James McKillop. Part III: Methods and motivations. 8. Working with staff to include people with dementia in research
Kate Allan
University of Stirling. 9. Successes and challenges in using focus groups with older people with dementia
Claire Bamford
University of Newcastle with Errollyn Bruce
Bradford Dementia Group. 10. 'Nobody's ever asked how I felt'
Rebekah Pratt
University of Stirling. 11. Don't leave me hanging on the telephone: Interviews with people with dementia using the telephone
Anne Mason
University of Stirling and Heather Wilkinson
University of Stirling. 12. Using video observation to include the experiences of people with dementia in research
Ailsa Cook
University of Stirling. 13. South Asian people with dementia: Research issues
Alison M. Bowes
University of Stirling and Heather Wilkinson
University of Stirling. References. Index.