Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts (eBook, PDF)

Redaktion: Lucius-Hoene, Gabriele; Meyer, Thorsten; Holmberg, Christine

• Format: PDF

Produktbeschreibung

What is it like to live with an illness? How do diagnostic procedures, treatments, and other encounters with medical institutions affect a patient's private and social life? By asking these types of questions, illness narratives have gained a reputation as a scientific domain in medicine in the last thirty years. Today, a patient's story plays an important role in doctor-patient communication and the development of a healing relationship. However, whereas patient experiences have been well acknowledged, methodologically reflected upon and widely collected as research data, less consideration has been invested in exploring how they work in practice. Used in the context of diagnosis, treatment, and teaching, patient stories give us a new perspective on how healthcare could be improved. Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts highlights the problems, challenges, and opportunities we face when using patient perspectives in practice and research in a clear format to provide readers with a comprehensive overview of this field. It investigates the epistemological foundations and communicational properties of illness narratives, as well as the pragmatic effects of using them as clinical and educational instruments. Significantly, it presents new examples from patient intakes and interviews that illustrate the disparity in communication between patients and medical professionals. The studies in this book also evaluate the experiences of medical practitioners and students who consciously use patient narratives as a tool for improved communication and diagnosis. Divided into eight sections with practical examples for medical teaching and practice, this book covers the use of patient narratives in communication training and decision making across medicine and psychotherapy. In addition, it reflects on the ethical aspects of working with a patient's personal experience of their illness, reports on cultural differences across the globe, and analyses how patients' stories are used in politics and the media. Written by scholars from multiple disciplines across clinical and theoretical fields, this rich resource provides a critical stance on the use of narratives in medical research, education, and practice.

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Produktdetails

• Verlag: Oxford University Press
• Seitenzahl: 384
• Erscheinungstermin: 4. Oktober 2018
• Englisch
• ISBN-13: 9780192529404
• Artikelnr.: 54582334

Autorenporträt

Gabriele Lucius-Hoene is a retired professor and psychotherapeut at the Department of Rehabilitation Psychology, Institute of Pschology, University of Freiburg. Her research interests are narrative and conversational analysis of life stories, especially illness narratives, and the ways people construct their identities and cope with challenges and suffering by telling their stories. Christine Holmberg is Professor of Social Medicine and Epidemiology at the Medical School Brandenburg Theodor Fontane. She was trained in anthropology at Humboldt University Berlin and Harvard Medical School, and in epidemiology at the University of Illinois at Chicago. Her research interests include the influence of medical and statistical technologies on patient narratives, experiences, and decision making. Thorsten Meyer is Professor of Rehabilitation Sciences and has recently become a member of the Faculty of Public Health at the University of Bielefeld, Germany. Trained as a psychologist, he has worked in different health research departments (social psychiatry, social medicine, rehabilitation) in Germany and Switzerland. He currently serves as a speaker of the Qualitative Research Working Group with the German Network on Health Services Research.

Inhaltsangabe

* Section 1: Introduction
* 1: Gabriele Lucius-Hoene, Christine Holmberg and Thorsten Meyer:
Introduction: Chances and problems of illness narratives
* Section 2: Methodological and epistemological challenges
* 2: Gabriele Lucius-Hoene, Martina Breuning and Cornelia Helfferich:
Illness narratives in practice: which questions do we have to face
when collecting and using them?
* 3: Janka Koschack and Wolfgang Himmel: The researchers' role in
re-constructing patient narratives to present them as patient
experiences
* 4: Lars-Christer Hydén: Stories, illness and narrative norms
* 5: Thorsten Meyer and Margret Xyländer: Choices of illness narratives
in practice: applying ideas of sampling and generalizability
* Section 3: Ethical and communicational aspects of using narratives in
medicine
* 6: Hille Haker: Illness Narratives in Counselling - Narrative
Medicine and Narrative Ethics
* 7: Maya Lavie-Ajayi and Ora Nakash: An Illness Narrative or a Social
Injustice Narrative?
* Section 4: Narratives in psychotherapy, rehabilitation and vocational
training
* 8: Sabine Corsten and Friedericke Hardering: Retelling one's life
story - Using narratives to improve quality of life in case of
chronic language impairment
* 9: Peter Frommelt, Maria I. Medved, and Jens Brockmeier: Narrative
practice, Neurotrauma, and Rehabilitation
* 10: Ernst von Kardoff: Illness narratives in the workplace
* Section 5: Narratives in training of communication and empathy
* 11: Alexander Kiss and Claudia Steiner: Using narratives for Medical
Humanities in medical training
* 12: Yon Ok Jung, Gabriele Lucius-Hoene and Yong Ik Bak: Narratives
for training doctors in Korea
* 13: Alexander Palant and Wolfgang Himmel: How to use illness
narratives in medical education: First teaching experiences with the
German DIPEx website project
* 14: Paula McDonald: Using patient narratives as source material for
creative writing
* 15: Chris Heape, Henry Larsen, and Merja Ryöppy: Engaging the
Vulnerable Encounter: engendering narratives for change in healthcare
practice by using participatory theatre methods
* 16: Joyce Lamerichs and Manna Alma: Drawing on narrative accounts of
dementia in education and care
* Section 6: Narratives in diagnostics
* 17: Elisabeth Gülich: Using illness narratives in clinical diagnosis:
narrative reconstruction of epileptic and non-epileptic seizures and
panic attacks
* 18: Christian Rösler: Structural Dream Analysis: a narrative
methodology for investigating the meaning of dream series and their
development in the course of psychotherapy
* Section 7: Narratives in decision making
* 19: Christine Holmberg: What's in a name: anecdotes, experience, and
the meaning of stories
* 20: Victoria A. Shaffer and Brian J. Zikmund-Fisher: Narratives in
decision aids: A controversy
* Section 8: Narratives in health care
* 21: Lisa Hinton, Louise Locock and Sue Ziebland: Understanding and
using health experiences to improve healthcare - examples from the
United Kingdom
* 22: Susan Law, Ilja Ormel, David Loutfi and John Lavis: Illness
narratives as evidence for healthcare policy
* 23: Rachel Grob and Mark Schlesinger: When Public and Private
Narratives Diverge: Media, Policy Advocacy, and the Paradoxes of
Newborn Screening Policy
* Section 9: Illness narratives in the media
* 24: Eleonora Massa and Valentina Simeoni: Pregnancy 2.0: A
Corpus-based Case Study for the Analysis of Illness Narratives Online
* 25: Erez C. Miller and Amos Fleischman: Changes in Authenticity:
Perceptions of Parents and Youth with ADHD of the Effects of
Stimulant Medication
* 26: Matthias Bandtel: Illness narratives in political communication:
instrumental, institutional, and social functions of political
actors' public illness accounts