Caring and ME/CFS (eBook, ePUB)
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it started with a glass of water Eirik knew something was wrong. His girlfriend, Mari, had had a fever-and never fully came back. At first it was just fatigue. Then it got worse. In the end, a simple glass of water was enough to knock her out for hours. They thought it was stress. The GP didn't know. One specialist talked about burnout, another about mental health. No one understood. And meanwhile Mari kept collapsing-and Eirik was left standing there, alone and powerless, in the middle of what would soon be given a name: ME. ¿ a book for anyone who sees themselves in Eirik Maybe you've stood...
it started with a glass of water Eirik knew something was wrong. His girlfriend, Mari, had had a fever-and never fully came back. At first it was just fatigue. Then it got worse. In the end, a simple glass of water was enough to knock her out for hours. They thought it was stress. The GP didn't know. One specialist talked about burnout, another about mental health. No one understood. And meanwhile Mari kept collapsing-and Eirik was left standing there, alone and powerless, in the middle of what would soon be given a name: ME. ¿ a book for anyone who sees themselves in Eirik Maybe you've stood beside someone who isn't believed. Maybe every day you try to hold everyday life, your family-and yourself-together. Maybe you feel the same emptiness Eirik described: "It felt like watching someone you love disappear-while no one else could see it." The book Pårørende og ME is made for you. It's written with warmth, lived experience, and deep respect for everything you're carrying-and it shows you how to move from powerlessness to mastery. what you'll find in the book ¿ understand the diagnosis-and PEM You'll learn what ME actually is, and what characterizes the illness: PEM (post-exertional malaise)-the delayed "crash" that makes even small activities trigger a major setback. ¿ pacing and energy balance You'll get practical advice on how to help your loved one plan activity and rest-and avoid running the body into the red. ¿ navigating health care You'll learn how to prepare for medical appointments, use a symptom log, and feel more confident when you need to be taken seriously. ¿ explaining ME to others The book gives you ready-made phrases-short, clear, and easy to understand-so you don't have to spend your energy on exhausting debates. ¿ handling emotions Grief, frustration, loneliness, and longing are common for family and friends. You'll get concrete tips for how to stand in it-and take care of yourself at the same time. ¿ sensory sensitivity and brain fog You'll get simple techniques for handling sensitivity to light, sound, and smells-and advice for communicating when words fall short. you get more than a book-you get a companion Pårørende og ME isn't a book you put away. It's a practical guide. A place to find comfort when you don't have it in you to Google anymore. Support for when you don't know what to say. A hand to hold-between the blows.
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