The management of chronic disease and the contribution patients make to their own care is attracting widespread attention, nationally and internationally. This is the first book to bring together those who have been instrumental in developing this practice, and to assess the value it holds for the different groups involved.
The management of chronic disease and the contribution patients make to their own care is attracting widespread attention, nationally and internationally. This is the first book to bring together those who have been instrumental in developing this practice, and to assess the value it holds for the different groups involved.
Roy Jones led the team that introduced Stanford's Arthritis Self Management Programme to the UK, as Director of Services at Arthritis Care. Between 1993 and 2000 the programme grew extensively and was piloted in the NHS after the adoption of the Expert Patients report in 2001. Roy served on the DoH Task Force and the DoH Implementation Group guiding those developments. Previously, as Director of the Council for Voluntary Service, Northampton and County, community development work formed his commitment to local level service delivery. He worked on the establishment of the Councils of Disabled People and supporting independent welfare rights services. His concern for disabled people continues as Vice Chair of the Disability Alliance. In his consultancy role he has worked for the Department of Health and a number of health management and pharmaceutical companies. His continuing academic links are primarily with Coventry University and The School of Pharmacy, London, UK.
Inhaltsangabe
* Foreword: Interview with Professor Kate Lorig * 1: F. Roy Jones: UK origins and arguments * 2: Jennifer Newbould: The ideas and health context where self-management emerged * 3: Participants views: * Scottish Lowlands * Tower Hamlets * The Christie, Manchester * 4: Advanced journeys into self-management: * A personal journey * The HOPE course * Developing the staying positive programme for adolescents * 5: Jean Thompson MBE: The principles of lay leadership * 6: Delivering courses now: * Looking at the Expert Patients Programme * The programme in Scotland * Why we chose to get involved with self-management in Tower Hamlets * Still questions after 15 years of experience * The online opportunity * Maintaining standards * 7: Dr Patrick Hill and Dr Mike Osborn: The value of self-management: retrieving a sense of self: the loss and reconstruction of a life * 8: Professor Dr David Colin-Thomé OBE: Self-management and government policy * 9: Keith Hawley MA: The business case for lay-led self-management * 10: An interview with Ayesha Dost: Implementing the pilot EPP * 11: Bob Sang (an interview with): Self-management and public and patient involvement * 12: Simon Knighton: The Expert Patient Programme community interest company: the future * 13: Natalie Grazin (an interview with): Co-creating health: transforming healthcare systems * 14: Three bodies of UK research: * Coventry University Applied Research Centre * The National Primary Care Research and Development Centre, Manchester * Learning from co-creating health * 15: David G. Taylor: What do we really know about benefits and value? * 16: F. Roy Jones: Which way is forward?
* Foreword: Interview with Professor Kate Lorig * 1: F. Roy Jones: UK origins and arguments * 2: Jennifer Newbould: The ideas and health context where self-management emerged * 3: Participants views: * Scottish Lowlands * Tower Hamlets * The Christie, Manchester * 4: Advanced journeys into self-management: * A personal journey * The HOPE course * Developing the staying positive programme for adolescents * 5: Jean Thompson MBE: The principles of lay leadership * 6: Delivering courses now: * Looking at the Expert Patients Programme * The programme in Scotland * Why we chose to get involved with self-management in Tower Hamlets * Still questions after 15 years of experience * The online opportunity * Maintaining standards * 7: Dr Patrick Hill and Dr Mike Osborn: The value of self-management: retrieving a sense of self: the loss and reconstruction of a life * 8: Professor Dr David Colin-Thomé OBE: Self-management and government policy * 9: Keith Hawley MA: The business case for lay-led self-management * 10: An interview with Ayesha Dost: Implementing the pilot EPP * 11: Bob Sang (an interview with): Self-management and public and patient involvement * 12: Simon Knighton: The Expert Patient Programme community interest company: the future * 13: Natalie Grazin (an interview with): Co-creating health: transforming healthcare systems * 14: Three bodies of UK research: * Coventry University Applied Research Centre * The National Primary Care Research and Development Centre, Manchester * Learning from co-creating health * 15: David G. Taylor: What do we really know about benefits and value? * 16: F. Roy Jones: Which way is forward?
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