Rebecca Dresser

Silent Partners

Human Subjects and Research Ethics

• Broschiertes Buch

Produktbeschreibung

The research ethics system was created without the help of people who know what it is like to be a research subject. This is a serious omission. Experts have overlooked ethical issues that matter to subjects. Silent Partners moves subjects to the forefront, giving them a voice in research ethics.

Produktdetails

• Verlag: Oxford University Press, USA
• Seitenzahl: 322
• Erscheinungstermin: 1. November 2018
• Englisch
• Abmessung: 208mm x 137mm x 20mm
• Gewicht: 417g
• ISBN-13: 9780190929183
• ISBN-10: 0190929189
• Artikelnr.: 54030316

Autorenporträt

Rebecca Dresser has taught medical and law students about legal and ethical issues in biomedical research, end-of-life care, genetics, and related topics since 1983. From 2002-2009, she was a member of the President's Council on Bioethics and from 2011-2015, a member of the National Institutes of Health Recombinant DNA Advisory Committee. She is the author of When Science Offers Salvation (2001), editor of Malignant (2012), and co-editor of The Human Use of Animals (1998, 2nd ed. 2008) all published by Oxford University Press.

Inhaltsangabe

Contents
Preface
1 Subject Perspectives: The Missing Element in Research Ethics
2 Personal Knowledge and Study Participation
3 The Everyday Ethics of Human Research
4 The Hidden World of Subjects: Rule-Breaking in Clinical Trials
5 Participants as Partners in Genetic Research
6 Terminally Ill Patients and the "Right to Try" Experimental Drugs
7 Embedded Ethics in Developing Country Research
8 Research Subjects as Literary Subjects
9 How to Hear Subjects
Index