Researching Health Together brings together authors who have produced innovative methods or implemented projects focused on different stages of the research process, from question development to evaluation and translation. Editor Emily B. Zimmerman gathers exemplary new methods and projects into one place for the benefit of students designing research projects and proposals, those learning stakeholder-engaged methods, and those involved in implementing and funding stakeholder-engaged projects. Each chapter addresses: how engagement was conceptualized, organized, and implemented; how engagement…mehr
Researching Health Together brings together authors who have produced innovative methods or implemented projects focused on different stages of the research process, from question development to evaluation and translation. Editor Emily B. Zimmerman gathers exemplary new methods and projects into one place for the benefit of students designing research projects and proposals, those learning stakeholder-engaged methods, and those involved in implementing and funding stakeholder-engaged projects. Each chapter addresses: how engagement was conceptualized, organized, and implemented; how engagement was evaluated; impacts on processes and outcomes of the project; and facilitators, barriers, and lessons learned. The book serves as a core textbook for courses in community-based health research at the graduate level.
Foreword - Joe V. Selby Acknowledgments About the Editor Introduction - Emily B. Zimmerman Thomas W. Concannon Part I: Stakeholder Engagement in Research Topic Identification and Modeling 1. Grassroots to Grasstops: A Stepwise Approach to Identify Community Health Priorities - Ann M. Cheney Christina M. Reaves Mary Figueroa Alejandra Cabral Greer Sullivan 2. Deliberative Engagement of Communities in Decisions about Research Spending (DECIDERS) - Susan Dorr Goold Zachary E. Rowe Karen Calhoun 3. Group Model Building as a Community Engagement Strategy - Faustine Williams Peter S. Hovmand Kurt C. Stange 4. The SEED Method: A Multi-level Stakeholder Approach to Research Question Development and Prioritization - Emily B. Zimmerman Sarah K. Cook Part II: Stakeholder Engagement in Research Design 5. The Community Engagement Studio: Tapping Into the Lived Experience of Community Members to Enhance Research - Yvonne A. Joosten Tiffany Israel Leah Dunkel Jacqueline Sims Consuelo Hopkins Wilkins 6. The History of PCORnet - Kimberly Marschhauser Claudia Grossmann Maryan Zirkle 7. Partners Not Participants: Engaging Patients in the American BRCA Outcomes and Utilization of Testing (ABOUT) Network - Marleah Dean Sue J. Friedman Rebecca Sutphen Beth Ann Bourquardez Clark Debra Duquette Lisa F. Rezende 8. Engagement Methods for Practice-Based Research Networks and the Challenges with Health Information Technology Implementation - Alex Krist Paulette Lail Kashiri J. Eric Peele Gary Iwamoto Colin Banas Jon Puro Part III: Implementing Stakeholder-Engaged Research 9. Free Range Humans: Engaging Patients Practices Provides and People on the High Plains - John M. Westfall Linda Zittleman Maret Felzien High Plains Research Network (HPRN) Community Advisory Council 10. Engaging Stakeholders in Implementation of Evidence-Based Programs - Annette Boaz Allison Metz 11. Communities Engaged and Advocating for Smoke-Free Environments (CEASE) - Payam Sheikhattari Jummai Apata Laurie Bezold Lisa Bleich Fernando A. Wagner 12. Translating Evidence to Policy: A Case Study of the San Francisco Soda Tax - Roberto Vargas Casey N. Palmer James Rouse Iñiguez Paula Fleisher Christina Goette Brittni Chicuata Sarah Campbell Fine Eric Mar Vanessa Bohm Laura A. Schmidt Part IV: Stakeholder Engagement in Health and Health Systems Interventions 13. Comparative Effectiveness Research: Stakeholder Engagement for a Comprehensive Perspective - Kelly Williams Tracy Carney Jane Kogan James Schuster 14. Achieving Patient Centered Health Care Innovation Through Stakeholder Engagement - L. Ebony Boulware Patti L. Ephraim Teri Browne Tara Strigo Felicia Hill-Briggs Jamie Green Chelsie Hauer 15. Community Engagement in an Urban AIAN Community to Address Diabetes Prevention - Lisa G. Rosas Jan J. Vasquez Jill Evans Rhonda McClinton-Brown Alberto Ojeda Matilda Owaleon-Ojeda Wayne Scott Waters Robert E. Garcia 16. Boot Camp Translation - Linda Zittleman Ashley Espinoza John M. Westfall Part V: Governance Evaluation And Ethics In Stakeholder-Engaged Research 17. Building the Proper Foundation: Governance for Stakeholder-Engaged Research - Holly L. Peay Elizabeth L. Cope Elizabeth Horn Madelaine E. Faulkner Thomas W. Carton Megan O'Boyle Lorraine B. Johnson 18. Evaluating Engagement: Does the involvement of stakeholders improve research? - Thomas W. Concannon 19. Collaborating to Evaluate: The Sí Texas Partnership-Centered Evaluation Model - Michelle K. Brodesky Karen Errichetti M. Marlen Ramirez San Juana Martinez-Gomez Stephanie Tapia Lisa Wolff Mary V. Davis 20. Ethics Considerations When Involving Patients as Partners in Health Research - Donald J. Willison Michael McDonald Acronyms Glossary Index About the Contributors
Foreword - Joe V. Selby Acknowledgments About the Editor Introduction - Emily B. Zimmerman Thomas W. Concannon Part I: Stakeholder Engagement in Research Topic Identification and Modeling 1. Grassroots to Grasstops: A Stepwise Approach to Identify Community Health Priorities - Ann M. Cheney Christina M. Reaves Mary Figueroa Alejandra Cabral Greer Sullivan 2. Deliberative Engagement of Communities in Decisions about Research Spending (DECIDERS) - Susan Dorr Goold Zachary E. Rowe Karen Calhoun 3. Group Model Building as a Community Engagement Strategy - Faustine Williams Peter S. Hovmand Kurt C. Stange 4. The SEED Method: A Multi-level Stakeholder Approach to Research Question Development and Prioritization - Emily B. Zimmerman Sarah K. Cook Part II: Stakeholder Engagement in Research Design 5. The Community Engagement Studio: Tapping Into the Lived Experience of Community Members to Enhance Research - Yvonne A. Joosten Tiffany Israel Leah Dunkel Jacqueline Sims Consuelo Hopkins Wilkins 6. The History of PCORnet - Kimberly Marschhauser Claudia Grossmann Maryan Zirkle 7. Partners Not Participants: Engaging Patients in the American BRCA Outcomes and Utilization of Testing (ABOUT) Network - Marleah Dean Sue J. Friedman Rebecca Sutphen Beth Ann Bourquardez Clark Debra Duquette Lisa F. Rezende 8. Engagement Methods for Practice-Based Research Networks and the Challenges with Health Information Technology Implementation - Alex Krist Paulette Lail Kashiri J. Eric Peele Gary Iwamoto Colin Banas Jon Puro Part III: Implementing Stakeholder-Engaged Research 9. Free Range Humans: Engaging Patients Practices Provides and People on the High Plains - John M. Westfall Linda Zittleman Maret Felzien High Plains Research Network (HPRN) Community Advisory Council 10. Engaging Stakeholders in Implementation of Evidence-Based Programs - Annette Boaz Allison Metz 11. Communities Engaged and Advocating for Smoke-Free Environments (CEASE) - Payam Sheikhattari Jummai Apata Laurie Bezold Lisa Bleich Fernando A. Wagner 12. Translating Evidence to Policy: A Case Study of the San Francisco Soda Tax - Roberto Vargas Casey N. Palmer James Rouse Iñiguez Paula Fleisher Christina Goette Brittni Chicuata Sarah Campbell Fine Eric Mar Vanessa Bohm Laura A. Schmidt Part IV: Stakeholder Engagement in Health and Health Systems Interventions 13. Comparative Effectiveness Research: Stakeholder Engagement for a Comprehensive Perspective - Kelly Williams Tracy Carney Jane Kogan James Schuster 14. Achieving Patient Centered Health Care Innovation Through Stakeholder Engagement - L. Ebony Boulware Patti L. Ephraim Teri Browne Tara Strigo Felicia Hill-Briggs Jamie Green Chelsie Hauer 15. Community Engagement in an Urban AIAN Community to Address Diabetes Prevention - Lisa G. Rosas Jan J. Vasquez Jill Evans Rhonda McClinton-Brown Alberto Ojeda Matilda Owaleon-Ojeda Wayne Scott Waters Robert E. Garcia 16. Boot Camp Translation - Linda Zittleman Ashley Espinoza John M. Westfall Part V: Governance Evaluation And Ethics In Stakeholder-Engaged Research 17. Building the Proper Foundation: Governance for Stakeholder-Engaged Research - Holly L. Peay Elizabeth L. Cope Elizabeth Horn Madelaine E. Faulkner Thomas W. Carton Megan O'Boyle Lorraine B. Johnson 18. Evaluating Engagement: Does the involvement of stakeholders improve research? - Thomas W. Concannon 19. Collaborating to Evaluate: The Sí Texas Partnership-Centered Evaluation Model - Michelle K. Brodesky Karen Errichetti M. Marlen Ramirez San Juana Martinez-Gomez Stephanie Tapia Lisa Wolff Mary V. Davis 20. Ethics Considerations When Involving Patients as Partners in Health Research - Donald J. Willison Michael McDonald Acronyms Glossary Index About the Contributors
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