William W. Lowrance

Privacy, Confidentiality, and Health Research

• Broschiertes Buch

Produktbeschreibung

Examines how privacy, confidentiality, consent, identifiability, safeguards and data sharing affect the pursuit of health research for the common good.

Produktdetails

• Verlag: Cambridge University Press
• Seitenzahl: 204
• Erscheinungstermin: 4. Juli 2013
• Englisch
• Abmessung: 229mm x 152mm x 11mm
• Gewicht: 304g
• ISBN-13: 9781107696631
• ISBN-10: 1107696631
• Artikelnr.: 40052602

Autorenporträt

Dr William Lowrance is a consultant in health research policy and ethics, based in La Grande Motte, France. He has been a faculty member or fellow, teaching and conducting research on health policy, environmental policy and risk decision making, at Harvard, Stanford and Rockefeller Universities. He has served as the director of the Life Sciences and Public Policy Program of Rockefeller University and as the executive director of the International Medical Benefit/Risk Foundation, headquartered in Geneva. His books include Of Acceptable Risk: Science and the Determination of Safety and Modern Science and Human Values. In recent years he has focused on the issues of privacy and confidentiality in health research, and he chaired the advisory committee that drafted the Ethics and Governance Framework of UK Biobank.

Inhaltsangabe

1. Introduction
2. Data, biospecimens, and research
3. Privacy, confidentiality, safeguards
4. Broad privacy and the data protection regimes
5. Health care, public health, and research regimes
6. Consent
7. Identifiability and person-specific data
8. Genetics and genomics
9. Safeguards and responsibilities
10. Data sharing, access, and transfer
11. Ways forward.