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Amid intense debate over the consequences of decoding the human genome and the impact of such technology on our lives, these lucid, richly-textured, jargon-free case studies explore the diverse meanings and impacts of genetic diagnoses for patients enduring currently incurable, ultimately fatal neurodegenerative diseases -- and for their family caregivers and clinicians.

Produktbeschreibung
Amid intense debate over the consequences of decoding the human genome and the impact of such technology on our lives, these lucid, richly-textured, jargon-free case studies explore the diverse meanings and impacts of genetic diagnoses for patients enduring currently incurable, ultimately fatal neurodegenerative diseases -- and for their family caregivers and clinicians.
Autorenporträt
Carole H. Browner is Professor in the Department of Anthropology, the Department of Womens Studies, and the Center for Culture and Health, which is based at UCLA's David Geffen School of Medicine NPI-Semel Institute for Neuroscience and Human Behavior, USA. She is also editor of the collection, Reproduction, Globalization and the State: New Theoretical and Ethnographic Perspectives (Duke University Press, 2010). H. Mabel Preloran has over 25 years experience as a cultural anthropologist in the US and in Latin America. She is a Research Anthropologist in UCLA's David Geffen School of Medicine NPI-Semel Institute for Neuroscience and Human Behavior, USA. Her current research focuses on the use of genetic testing in neurology.