Navigating Life with a Brain Tumor is a guide for anyone affected by brain tumors and their associated conditions-patients, family members, friends, and caregivers. Providing readily accessible information and real-world encouragement to people living with primary and metastatic brain tumors and their caregivers, this book discusses the basics of brain tumors, types of tumors, management of different tumors, related symptoms, treatments and side effects, the role of medical team members, and coping strategies from initial diagnosis throughout the course of the illness. At the same time, it…mehr
Navigating Life with a Brain Tumor is a guide for anyone affected by brain tumors and their associated conditions-patients, family members, friends, and caregivers. Providing readily accessible information and real-world encouragement to people living with primary and metastatic brain tumors and their caregivers, this book discusses the basics of brain tumors, types of tumors, management of different tumors, related symptoms, treatments and side effects, the role of medical team members, and coping strategies from initial diagnosis throughout the course of the illness. At the same time, it also offers practical suggestions on symptom management and lifestyle modification, as well as real-life anecdotes and advice from both patients and family members and friends who are experiencing this diagnosis.
Lynne P. Taylor (MD, FAAN) is Associate Professor of Hematology-Oncology and Neurology at Tufts Medical Centre in Massachusetts. Dr. Taylor received her residency training in neurology at the University of Pennsylvania and fellowship training in neuro-oncology at Memorial Sloan-Kettering Cancer Center in New York. Alyx B. Porter Umphrey (MD) is the Diretor of Neuro-Oncology and is Assistant Professor of Medicine and Neurology at the Mayo Clinic in Arizona. She completed her residency and neuro-oncology fellowship at the Mayo Clinic in Rochester, Minnesota. Diane Richard is a Minneapolis-based reporter, radio producer and writer. Her documentaries have aired on radio stations nationwide, and her writing, focused on profiles and features, has been published in magazines throughout the Twin Cities.
Inhaltsangabe
SECTION 1: WHERE DO I BEGIN? Introduction Step 1: Take a Deep Breath Step 2: Seek Out Information Step 3: Assemble Your Team Step 4: Keep a Journal Chapter 1: A Look Inside Your Brain Basics about the Brain Understanding Brain Tumors A Search for Why Getting a Diagnosis Chapter 2: Diagnosing Your Brain Tumor Assessment and Plan Getting the Medical Help You Need Assembling Your Team Finalizing Your Treatment Team Understanding Your Prognosis Time to Take Charge Chapter 3: Understanding Radiation Therapy Members of the Radiation Oncology Team Important Considerations Side Effects of Radiation Therapy Retreatment Radiation Therapy for Brain Metastases Radiation Therapy for Meningioma SECTION 2: HOW DO I DEAL WITH THIS? Chapter 4: Lifestyle Management Feel Empowered Reduce Stress Breathe Deeply Consider Meditation Move Your Muscles Eat Well Herbal and Dietary Supplements Driving Working Support Groups Cosmetic Issues Creativity and Art as Therapy Chapter 5: Symptom Management and Palliative Care Symptoms "Big Picture" Topics to Keep in Mind Chapter 6: Care of the Caregiver Pre-Surgery During Treatment Recurrence Chapter 7: Legal and Financial Issues Financial Planning Advance Directives Living Wills HIPAA-What Information Do I Have Access to and How to Make the Most of It Maintaining Tracking Information through Electronic Medical Records ADA Issues SECTION 3: WHAT CAN I AND MY MEDICAL TEAM DO ABOUT IT? Chapter 8: Tumors within the Skull Yet Outside the Brain Basics about Meningioma Treating Atypical and Malignant Meningiomas Pituitary Adenoma Acoustic Neuroma How Will Having One of These Tumors Affect My Life? Chapter 9: Primary Brain Tumors Understanding Your Treatment Options Understanding Your Pathology Report Radiation Therapy and Chemotherapy Chapter 10: Understanding Metastatic Brain Tumors Symptoms Diagnosis Treatment Prognosis Leptomeningeal Disease APPENDIX Resources GLOSSARY
SECTION 1: WHERE DO I BEGIN? Introduction Step 1: Take a Deep Breath Step 2: Seek Out Information Step 3: Assemble Your Team Step 4: Keep a Journal Chapter 1: A Look Inside Your Brain Basics about the Brain Understanding Brain Tumors A Search for Why Getting a Diagnosis Chapter 2: Diagnosing Your Brain Tumor Assessment and Plan Getting the Medical Help You Need Assembling Your Team Finalizing Your Treatment Team Understanding Your Prognosis Time to Take Charge Chapter 3: Understanding Radiation Therapy Members of the Radiation Oncology Team Important Considerations Side Effects of Radiation Therapy Retreatment Radiation Therapy for Brain Metastases Radiation Therapy for Meningioma SECTION 2: HOW DO I DEAL WITH THIS? Chapter 4: Lifestyle Management Feel Empowered Reduce Stress Breathe Deeply Consider Meditation Move Your Muscles Eat Well Herbal and Dietary Supplements Driving Working Support Groups Cosmetic Issues Creativity and Art as Therapy Chapter 5: Symptom Management and Palliative Care Symptoms "Big Picture" Topics to Keep in Mind Chapter 6: Care of the Caregiver Pre-Surgery During Treatment Recurrence Chapter 7: Legal and Financial Issues Financial Planning Advance Directives Living Wills HIPAA-What Information Do I Have Access to and How to Make the Most of It Maintaining Tracking Information through Electronic Medical Records ADA Issues SECTION 3: WHAT CAN I AND MY MEDICAL TEAM DO ABOUT IT? Chapter 8: Tumors within the Skull Yet Outside the Brain Basics about Meningioma Treating Atypical and Malignant Meningiomas Pituitary Adenoma Acoustic Neuroma How Will Having One of These Tumors Affect My Life? Chapter 9: Primary Brain Tumors Understanding Your Treatment Options Understanding Your Pathology Report Radiation Therapy and Chemotherapy Chapter 10: Understanding Metastatic Brain Tumors Symptoms Diagnosis Treatment Prognosis Leptomeningeal Disease APPENDIX Resources GLOSSARY
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