This work explores the way changes in technology have affected the relationship between ethics and medicine, generating new approaches to ethical issues and the implications of medical practice. Drawing on extensive ethnographic research with families affected by Huntington's Disease, Monica Konrad explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise to develop policy, clinical services and support.
This work explores the way changes in technology have affected the relationship between ethics and medicine, generating new approaches to ethical issues and the implications of medical practice. Drawing on extensive ethnographic research with families affected by Huntington's Disease, Monica Konrad explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise to develop policy, clinical services and support.
Monica Konrad is Fellow of Girton College and Research Associate at the Department of Social Anthropology, University of Cambridge. Her recent publications address the relevance of contemporary anthropology for global governance in science, international bioethics, and interdisciplinary studies.
Inhaltsangabe
Part I. Ethnography as Linkage Map: 1. Thinking futures 2. Approaching translocations Part II. 'Home Truths': 3. Foretelling foreknowledge 4. Tracing genealogies of non-disclosure Part III. Relational Ethics in Practice: 5. Reproducing exclusion 6. Relinquishing exclusion 7. Conclusion Appendix.
Part I. Ethnography as Linkage Map: 1. Thinking futures 2. Approaching translocations Part II. 'Home Truths': 3. Foretelling foreknowledge 4. Tracing genealogies of non-disclosure Part III. Relational Ethics in Practice: 5. Reproducing exclusion 6. Relinquishing exclusion 7. Conclusion Appendix.
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