Combining scientific knowledge with personal narrative, this book tells the story of Paul Allen, who following a stroke has Locked-In Syndrome and is unable to move or speak due to paralysis of nearly all voluntary muscles.
Combining scientific knowledge with personal narrative, this book tells the story of Paul Allen, who following a stroke has Locked-In Syndrome and is unable to move or speak due to paralysis of nearly all voluntary muscles.
Barbara A. Wilson is a clinical neuropsychologist who has worked in brain injury rehabilitation for 40 years. She edits the journal Neuropsychological Rehabilitation. This is her 27th book. Paul Allen has lived with Locked-In Syndrome since 2012. Before his stroke he was a singer, photographer, computer programmer and project manager. Anita Rose is the Consultant Neuropsychologist and Director of Therapies at the Raphael Hospital, UK and also works as an independent consultant across the globe. She has researched and published extensively on brain injury, chronic neurological conditions and multiple sclerosis. Veronika Kubickova is a trainee clinical psychologist at the University of Oxford, UK. Previously having worked as an assistant psychologist in neuro-rehabilitation, she has helped people re-adjust to life after brain injury. After qualifying, she plans to work with refugee children who have experienced trauma.
Inhaltsangabe
Foreword Steven Laureys 1. What Is Locked-In Syndrome? What Causes It? Who Is Most at Risk? Do People Recover from this Condition? 2. Accounts of People with LIS 3. Neuropsychological Assessments of Patients with LIS: How Normal Is Their Cognitive Functioning? 4. Is it Always Easy to Diagnose LIS? 5. Paul s journey 6. An Interview with Liz, Paul s Wife 7. Treatment at the Raphael Hospital 8. Interviews with Paul s Friends 9. Paul s Continuing Involvement with Music 10. Quality of Life for People with LIS, and Assessing Capacity 11. Ethical Issues in Locked-In Syndrome 12. Summary and Conclusions
Foreword Steven Laureys 1. What Is Locked-In Syndrome? What Causes It? Who Is Most at Risk? Do People Recover from this Condition? 2. Accounts of People with LIS 3. Neuropsychological Assessments of Patients with LIS: How Normal Is Their Cognitive Functioning? 4. Is it Always Easy to Diagnose LIS? 5. Paul s journey 6. An Interview with Liz, Paul s Wife 7. Treatment at the Raphael Hospital 8. Interviews with Paul s Friends 9. Paul s Continuing Involvement with Music 10. Quality of Life for People with LIS, and Assessing Capacity 11. Ethical Issues in Locked-In Syndrome 12. Summary and Conclusions
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