This book collects parent narratives, personal experience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs. It presents parents as moral individuals struggling to find their own way through relatively unexplored territory, in order to provide for their child the best life possible.
This book collects parent narratives, personal experience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs. It presents parents as moral individuals struggling to find their own way through relatively unexplored territory, in order to provide for their child the best life possible.
Lisa C. Freitag practiced as a pediatrician for over twenty-five years, before returning to school to pursue an interest in the families of children with special needs. She received a Masters degree in Bioethics from the University of Minnesota Center for Bioethics in 2013. She continues to work in clinical ethics and explore the intersection between medicine and caregiving.
Inhaltsangabe
Preface Chapter 1 - Introduction Chapter 2 - Defining Extreme Caregiving Chapter 3 - Hard Labor Chapter 4 - Narrative and the Phases of Care Chapter 5 - Attentiveness/Responsibility: The Invisible Work of Care Chapter 6 - Competence Chapter 7 - Responsiveness Chapter 8 - Holding the Future Chapter 9 - Conclusion: Caring With References
Preface Chapter 1 - Introduction Chapter 2 - Defining Extreme Caregiving Chapter 3 - Hard Labor Chapter 4 - Narrative and the Phases of Care Chapter 5 - Attentiveness/Responsibility: The Invisible Work of Care Chapter 6 - Competence Chapter 7 - Responsiveness Chapter 8 - Holding the Future Chapter 9 - Conclusion: Caring With References
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