Promoting more thoughtful attention to the complex ethical problems that arise when research involves children, this fully updated new edition of Ethics and Research with Children presents 14 case studies featuring some of the most challenging and fascinating ethical dilemmas in pediatric research.
Promoting more thoughtful attention to the complex ethical problems that arise when research involves children, this fully updated new edition of Ethics and Research with Children presents 14 case studies featuring some of the most challenging and fascinating ethical dilemmas in pediatric research.
Eric Kodish, MD is Professor of Pediatrics at the Lerner College of Medicine, Cleveland Clinic. Robert M. Nelson, MD, PhD is Senior Director of Pediatric Drug Development in the Child Health Innovation and Leadership Department (CHILD), Johnson & Johnson.
Inhaltsangabe
* Chapter 1: Ethics and Research with Children: Introduction to the Second Edition * Eric Kodish and Robert M. Nelson * Chapter 2: Ethical Challenges Related to Participation of Adolescents and Young Adults with Intellectual Disability in Research * Pamela Nathanson, Theodore Schall, and Chris Feudtner * Chapter 3: Ethical Challenges Conducting Pediatric Research in the Era of Scarce Drugs * Yoram Unguru * Chapter 4: Catastrophically ill children, access to unregistered medical interventions and trial recruitment needs: an ethical analysis * Thomas Hartvigsson and Udo Schuklenk * Chapter 5: Ethical Issues in the Neonatal Surfactant, Positive Pressure and Oximetry Randomized Trial * John D. Lantos * Chapter 6: Invasive Placebos, Patient Burdens and Community Advocacy: A Federal Ethics Panel Protocol Review * Donna Snyder, Catherine Lee, Robert Nelson * Chapter 7: When if ever, is it ethical to do research in developing countries that could not be done ethically in developed countries? * Lainie Friedman Ross, MD, PhD * Chapter 8: The Welfare of Children, Research Ethics and the Bucharest Early Intervention Project * Maria Master and Joseph Fins * Chapter 9: Ethical Issues in Genetic Research with Infants: Biospecimen Use and Genome Sequencing * Erin Rothwell and Jeffrey Botkin * Chapter 10: Parental Permission for Neonatal Clinical Trials * Benjamin Wilfond and Anita Shah * Chapter 11: Communication and Decision-Making with Parents and Seriously Ill Children about Phase 1 Research Trials * Melissa K. Cousino, Wynne E. Morrison, and Victoria A. Miller * Chapter 12: Involving Parents and Children in Community Engaged Research: Ethical Considerations * Erin Talati Paquette and Lainie Friedman Ross * Chapter 13: Social Media and Pediatric Research Recruitment * Luke Gelinas and Jennifer Cohn Kesselheim * Chapter 14: Payments for Participation of Children in Research * Douglas S. Diekema * Chapter 15: Clinical innovations near the boundary of viability - the artificial womb * Ryan Antiel and Alan W. Flake * Chapter 16: Synthesis and Concluding Reflections * Robert M. Nelson and Eric Kodish
* Chapter 1: Ethics and Research with Children: Introduction to the Second Edition * Eric Kodish and Robert M. Nelson * Chapter 2: Ethical Challenges Related to Participation of Adolescents and Young Adults with Intellectual Disability in Research * Pamela Nathanson, Theodore Schall, and Chris Feudtner * Chapter 3: Ethical Challenges Conducting Pediatric Research in the Era of Scarce Drugs * Yoram Unguru * Chapter 4: Catastrophically ill children, access to unregistered medical interventions and trial recruitment needs: an ethical analysis * Thomas Hartvigsson and Udo Schuklenk * Chapter 5: Ethical Issues in the Neonatal Surfactant, Positive Pressure and Oximetry Randomized Trial * John D. Lantos * Chapter 6: Invasive Placebos, Patient Burdens and Community Advocacy: A Federal Ethics Panel Protocol Review * Donna Snyder, Catherine Lee, Robert Nelson * Chapter 7: When if ever, is it ethical to do research in developing countries that could not be done ethically in developed countries? * Lainie Friedman Ross, MD, PhD * Chapter 8: The Welfare of Children, Research Ethics and the Bucharest Early Intervention Project * Maria Master and Joseph Fins * Chapter 9: Ethical Issues in Genetic Research with Infants: Biospecimen Use and Genome Sequencing * Erin Rothwell and Jeffrey Botkin * Chapter 10: Parental Permission for Neonatal Clinical Trials * Benjamin Wilfond and Anita Shah * Chapter 11: Communication and Decision-Making with Parents and Seriously Ill Children about Phase 1 Research Trials * Melissa K. Cousino, Wynne E. Morrison, and Victoria A. Miller * Chapter 12: Involving Parents and Children in Community Engaged Research: Ethical Considerations * Erin Talati Paquette and Lainie Friedman Ross * Chapter 13: Social Media and Pediatric Research Recruitment * Luke Gelinas and Jennifer Cohn Kesselheim * Chapter 14: Payments for Participation of Children in Research * Douglas S. Diekema * Chapter 15: Clinical innovations near the boundary of viability - the artificial womb * Ryan Antiel and Alan W. Flake * Chapter 16: Synthesis and Concluding Reflections * Robert M. Nelson and Eric Kodish
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