This volume presents the ethical implications of risk information as related to genetics and other health data for policy decisions at clinical, research and societal levels. It will be of great interest to students and scholars of theoretical and clinical medical ethics, medical sociology, risk communication and ethics of risk.
This volume presents the ethical implications of risk information as related to genetics and other health data for policy decisions at clinical, research and societal levels. It will be of great interest to students and scholars of theoretical and clinical medical ethics, medical sociology, risk communication and ethics of risk.
Ulrik Kihlbom is Associate Professor in Medical Ethics at Uppsala University. Mats G. Hansson is Senior Professor of Biomedical Ethics and Director of The Centre for Research Ethics & Bioethics (CRB) at Uppsala University. Silke Schicktanz is Full Professor of Cultural and Ethical Studies of Biomedicine at University Medical Center Göttingen.
Inhaltsangabe
1. Introduction Part 1: New Visions of Genetics and Genomics as Integrative Medicine 2. Genomic Medicine in 2025-2030 Part 2: Risk Empowerment 3. Genomic Risk Perception and Implications for Patient Outcomes from Genetic Counselling 4. Genomic and Biological Risk Profiling Part 3: Rethinking Professional Responsibility 5. On Patients' Difficulties in Understanding Medical Risks and the Aims of Clinical Risk Communication 6. Ethical Consideration about Health Risk Communication and Professional Responsibility 7. Uncertainty and Risk Perception in the Context of Personalized Medicine Part 4: Social and Policy Implications 8. Direct to Consumer Personal Genomic Testing and Trust 9. The Application of New Technologies to Improve Literacy among the General Public and to Promote Informed Decisions in Genomics 10. Algorithms as Emerging Policy Tools in Medicine 11. Epilogue
1. Introduction Part 1: New Visions of Genetics and Genomics as Integrative Medicine 2. Genomic Medicine in 2025-2030 Part 2: Risk Empowerment 3. Genomic Risk Perception and Implications for Patient Outcomes from Genetic Counselling 4. Genomic and Biological Risk Profiling Part 3: Rethinking Professional Responsibility 5. On Patients' Difficulties in Understanding Medical Risks and the Aims of Clinical Risk Communication 6. Ethical Consideration about Health Risk Communication and Professional Responsibility 7. Uncertainty and Risk Perception in the Context of Personalized Medicine Part 4: Social and Policy Implications 8. Direct to Consumer Personal Genomic Testing and Trust 9. The Application of New Technologies to Improve Literacy among the General Public and to Promote Informed Decisions in Genomics 10. Algorithms as Emerging Policy Tools in Medicine 11. Epilogue
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