List of contributors Section 1. Palliative Care Principles: 1. The role of palliative medicine in neuropalliative care 2. Common challenges in a palliative medicine consultation 3. When is the right time to give up? 4. A request for cognitive enhancement 5. 'Doctor, how long does he have?' 6. 'Will I walk again?' Prognostication in spinal cord compression 7. Prolonged grief following the death of a spouse 8. Mitigating bereavement risk following a sudden death 9. 'I'm praying for a miracle' 10. 'Should his devices be deactivated?' 11. 'Is it time for hospice?' Section 2. Cerebrovascular Diseases: 12. Temporary non-invasive ventilation in a do-not-intubate patient 13. Stroke and end-stage heart failure 14. Stroke and decompressive hemicraniectomy in a young patient 15. Surrogate decision-making after a malignant MCA ischemic stroke 16. A time-limited trial in a case of a basilar artery occlusion 17. 'Mom never wanted a feeding tube' 18. Painfully cold, numb, and weak: clinical characteristics and management of central post-stroke pain 19. Shared decision-making for stroke patients Section 3. Neurodegenerative and Neuromuscular Diseases: 20. Making a diagnosis with compassion in Parkinson's disease 21. Caring for patients and families affected by advanced Parkinson's disease 22. Cognitive decline in Parkinson disease 23. Evolving goals of care as progressive supranuclear palsy progresses 24. Psychosis and caregiver strain in Parkinson disease 25. Constipation and Parkinson disease 26. Keeping Mom home at the end of life 27. 'I miss him already' 28. The dynamic role of palliative medicine throughout the course of neuromuscular disease 29. Considerations for non-invasive ventilation in neuromuscular disease 30. Optimizing symptoms before a compassionate wean from the ventilator 31. The case of a lost patch 32. Dementia, delirium, and a distended bladder Section 4. Neuro-Oncology: 33. 'I don't want to be a burden on my family' 34. Palliative amputation for refractory pain 35. Chemotherapy-induced peripheral neuropathy 36. 'Two years may be too far away' 37. Shifting the goals of care 38. Management of seizures in patients with glioma from diagnosis through the end of life 39. The burden of health care surrogacy in the absence of instruction 40. 'But my brother should be treated' 41. Taking flight at the end of life Section 5. Pediatric Neurology: 42. Not another shunt revision 43. Intrathecal baclofen for severe spasticity Section 6. Demyelinating Diseases and Autoimmune Neurology: 44. Palliative care in multiple sclerosis: navigating chronic disease can be a difficult pill to swallow at a young age 45. The perils of late advance care planning in multiple sclerosis 46. Comparing and contrasting the approach to advance care planning in multiple sclerosis 47. Comparing and contrasting the approach to advance care planning in multiple sclerosis 48. Neuropsychological disturbances and fatigue in multiple sclerosis 49. Pain and psychosocial symptoms in newly diagnosed neuromyelitis optica spectrum disorder (NMOSD) Index.
List of contributors Section 1. Palliative Care Principles: 1. The role of palliative medicine in neuropalliative care 2. Common challenges in a palliative medicine consultation 3. When is the right time to give up? 4. A request for cognitive enhancement 5. 'Doctor, how long does he have?' 6. 'Will I walk again?' Prognostication in spinal cord compression 7. Prolonged grief following the death of a spouse 8. Mitigating bereavement risk following a sudden death 9. 'I'm praying for a miracle' 10. 'Should his devices be deactivated?' 11. 'Is it time for hospice?' Section 2. Cerebrovascular Diseases: 12. Temporary non-invasive ventilation in a do-not-intubate patient 13. Stroke and end-stage heart failure 14. Stroke and decompressive hemicraniectomy in a young patient 15. Surrogate decision-making after a malignant MCA ischemic stroke 16. A time-limited trial in a case of a basilar artery occlusion 17. 'Mom never wanted a feeding tube' 18. Painfully cold, numb, and weak: clinical characteristics and management of central post-stroke pain 19. Shared decision-making for stroke patients Section 3. Neurodegenerative and Neuromuscular Diseases: 20. Making a diagnosis with compassion in Parkinson's disease 21. Caring for patients and families affected by advanced Parkinson's disease 22. Cognitive decline in Parkinson disease 23. Evolving goals of care as progressive supranuclear palsy progresses 24. Psychosis and caregiver strain in Parkinson disease 25. Constipation and Parkinson disease 26. Keeping Mom home at the end of life 27. 'I miss him already' 28. The dynamic role of palliative medicine throughout the course of neuromuscular disease 29. Considerations for non-invasive ventilation in neuromuscular disease 30. Optimizing symptoms before a compassionate wean from the ventilator 31. The case of a lost patch 32. Dementia, delirium, and a distended bladder Section 4. Neuro-Oncology: 33. 'I don't want to be a burden on my family' 34. Palliative amputation for refractory pain 35. Chemotherapy-induced peripheral neuropathy 36. 'Two years may be too far away' 37. Shifting the goals of care 38. Management of seizures in patients with glioma from diagnosis through the end of life 39. The burden of health care surrogacy in the absence of instruction 40. 'But my brother should be treated' 41. Taking flight at the end of life Section 5. Pediatric Neurology: 42. Not another shunt revision 43. Intrathecal baclofen for severe spasticity Section 6. Demyelinating Diseases and Autoimmune Neurology: 44. Palliative care in multiple sclerosis: navigating chronic disease can be a difficult pill to swallow at a young age 45. The perils of late advance care planning in multiple sclerosis 46. Comparing and contrasting the approach to advance care planning in multiple sclerosis 47. Comparing and contrasting the approach to advance care planning in multiple sclerosis 48. Neuropsychological disturbances and fatigue in multiple sclerosis 49. Pain and psychosocial symptoms in newly diagnosed neuromyelitis optica spectrum disorder (NMOSD) Index.
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