This authoritative edited text looks at how diverse and complicated experiences of loss can be for people with Intellectual Disabilities (ID). It discusses current theory, practice issues in health and care settings, and specific considerations for children, individuals with autism, those in forensic environments, and those facing their own death.
This authoritative edited text looks at how diverse and complicated experiences of loss can be for people with Intellectual Disabilities (ID). It discusses current theory, practice issues in health and care settings, and specific considerations for children, individuals with autism, those in forensic environments, and those facing their own death.
Acknowledgements. Foreword by Owen Barr Head of School of Nursing University of Ulster UK. Contributors. Introduction. Sue Read Professor of Learning Disability Nursing Keele University UK. Part I: Theoretical Perspectives. 1. Loss in the Caring Context. Sue Read. 2. Living with Loss. Sue Read and Mary Davies a woman with intellectual disabilities and member of Reach UK. 3. Grief and Mourning. Sue Read. 4. Complicated Grief. Philip Dodd Director of Psychiatry St. Michael's House Clinical Senior Lecturer Trinity College Dublin and Senior Lecturer Centre for Disability Studies University College Dublin Ireland and Noelle Blackman CEO of Respond and Research Fellow University Hertfordshire UK. 5. Spirituality. William Gaventa Director of Community and Congregational Supports Elizabeth M. Boggs Center on Developmental Disabilities and Associate Professor UMDNJ-Robert Wood Johnson Medical School Georgia US. 6. Psychological Support in Health Care. Helena Priest Senior Lecturer Keele University and Research Director Doctorate in Clinical Psychology Staffordshire University UK. Part II: Contemporary Practice Issues. 7. Loss and Resilience. Linda Machin Honorary Research Fellow Keele University UK. 8. Working Creatively to Facilitate Loss. Sue Read. 9. Caring Fatigue. Ted Bowman Adjunct Professor University of Minnesota (Family Education) and University of Saint Thomas (Social Work) Minnesota US. 10. Supporting Professional Carers. Michele Wiese Research Associate University of Sydney Australia. 11. Advocacy Empowerment and Communication. Patsy Corcoran REACH Coordinator Asist Advocacy Services UK. Part III: Specialist Contexts and Considerations. 12. Loss the Family and Caring. Mike Gibbs Lecturer in Learning Disability Nursing Keele University UK. 13. Loss and People with Autism. Rachel Forrester-Jones Reader in Health Community and Social Care Tizard Centre UK. 14. Loss in Forensic Environments. Ben Hobson Clinical Psychologist National High Secure Learning Disability Service Rampton Hospital UK Sue Read and Helena Priest. 15. Supporting Children and Young People with an Intellectual Disability and Life-Limiting Conditions. Erica Brown Senior Lecturer in Early Childhood Institute of Education University of Worcester UK. 16. Loss and End of Life Care. Karen Ryan Consultant in Palliative Medicine St Francis Hospice and Mater Hospital and Senior Investigator All Ireland Institute of Hospice and Palliative Care Suzanne Guerin Centre for Disability Studies University College Dublin and All Ireland Institute of Hospice & Palliative Care and Phil Larkin School of Nursing and Midwifery University College Dublin and All Ireland Institute of Hospice & Palliative Care Ireland. 17. Living with Shattered Dreams ¿ A Parent's Perspective. Mandy Parks parent of a daughter with severe disabilities UK. 18. Research Inclusivity and Marginalised Groups. Sue Read. Conclusion. Sue Read. References. Index.
Acknowledgements. Foreword by Owen Barr Head of School of Nursing University of Ulster UK. Contributors. Introduction. Sue Read Professor of Learning Disability Nursing Keele University UK. Part I: Theoretical Perspectives. 1. Loss in the Caring Context. Sue Read. 2. Living with Loss. Sue Read and Mary Davies a woman with intellectual disabilities and member of Reach UK. 3. Grief and Mourning. Sue Read. 4. Complicated Grief. Philip Dodd Director of Psychiatry St. Michael's House Clinical Senior Lecturer Trinity College Dublin and Senior Lecturer Centre for Disability Studies University College Dublin Ireland and Noelle Blackman CEO of Respond and Research Fellow University Hertfordshire UK. 5. Spirituality. William Gaventa Director of Community and Congregational Supports Elizabeth M. Boggs Center on Developmental Disabilities and Associate Professor UMDNJ-Robert Wood Johnson Medical School Georgia US. 6. Psychological Support in Health Care. Helena Priest Senior Lecturer Keele University and Research Director Doctorate in Clinical Psychology Staffordshire University UK. Part II: Contemporary Practice Issues. 7. Loss and Resilience. Linda Machin Honorary Research Fellow Keele University UK. 8. Working Creatively to Facilitate Loss. Sue Read. 9. Caring Fatigue. Ted Bowman Adjunct Professor University of Minnesota (Family Education) and University of Saint Thomas (Social Work) Minnesota US. 10. Supporting Professional Carers. Michele Wiese Research Associate University of Sydney Australia. 11. Advocacy Empowerment and Communication. Patsy Corcoran REACH Coordinator Asist Advocacy Services UK. Part III: Specialist Contexts and Considerations. 12. Loss the Family and Caring. Mike Gibbs Lecturer in Learning Disability Nursing Keele University UK. 13. Loss and People with Autism. Rachel Forrester-Jones Reader in Health Community and Social Care Tizard Centre UK. 14. Loss in Forensic Environments. Ben Hobson Clinical Psychologist National High Secure Learning Disability Service Rampton Hospital UK Sue Read and Helena Priest. 15. Supporting Children and Young People with an Intellectual Disability and Life-Limiting Conditions. Erica Brown Senior Lecturer in Early Childhood Institute of Education University of Worcester UK. 16. Loss and End of Life Care. Karen Ryan Consultant in Palliative Medicine St Francis Hospice and Mater Hospital and Senior Investigator All Ireland Institute of Hospice and Palliative Care Suzanne Guerin Centre for Disability Studies University College Dublin and All Ireland Institute of Hospice & Palliative Care and Phil Larkin School of Nursing and Midwifery University College Dublin and All Ireland Institute of Hospice & Palliative Care Ireland. 17. Living with Shattered Dreams ¿ A Parent's Perspective. Mandy Parks parent of a daughter with severe disabilities UK. 18. Research Inclusivity and Marginalised Groups. Sue Read. Conclusion. Sue Read. References. Index.
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