Peter Balint, Raymond Zilinskas

The Human Genome Project and Minority Communities

Ethical, Social, and Political Dilemmas

• Gebundenes Buch

Produktbeschreibung

Zilinskas and Balint and their contributors examine the divisions between minority groups and the scientific community, particularly in the area of medical and genetic research. Minorities have reasons to be skeptical of medical research in general and genetics research in particular. The sad history of the Tuskegee experiment, in which black men with syphilis were left untreated so that the course of the disease could be studied, undermined confidence in the ethics of medical researchers. More recently, publication of The Bell Curve reanimated controversy over purported genetic distinctions among the races that could have powerfully negative social implications. In contrast, as the essays make clear, the Human Genome Project, conducted in accordance with the highest ethical standards, has the potential to make dramatic positive contributions to the health of all human beings. Members of minority communities in particular-who statistically are at high risk of adverse health outcomes in the United States-have much to gain from innovative medical diagnostics and therapies that will result from the study of human genetics. Therefore, if we are to benefit fully from this new knowledge, it is vital that the distrust, skepticism, and misconceptions relating to genetics research be overcome. This is a provocative collection for scholars, students, researchers, and community leaders involved with minority and public health issues.

Produktdetails

• Verlag: Bloomsbury 3PL
• Seitenzahl: 160
• Erscheinungstermin: 30. November 2000
• Englisch
• Abmessung: 222mm x 145mm x 12mm
• Gewicht: 343g
• ISBN-13: 9780275969615
• ISBN-10: 0275969614
• Artikelnr.: 21070169

Autorenporträt

Peter J. Balint, Raymond A. Zilinskas

Inhaltsangabe

Preface The Age of Biology and the Responsible Ancestor by Martha A. Krebs
and Daniel Drell The Human Genome Project: Hereditary Diseases and
Implications for Gene Therapy by Karen E. Nelson The Genetics of Human
Behavior: Lessons from the Human Genome Project by Jonathan Beckwith The
Human Genome Project and the African American Community: Race, Diversity,
and American Science by Fatimah Jackson Scientific and Folk Ideas about
Heredity by Jonathan M. Marks Social and Medical Implications of New
Genetic Techniques by Robert F. Murray, Jr. Genetic Education to African
American and Russian Immigrant Communities in Northwest Baltimore by Ilana
Suez Mittman The Human Genome Project and Buddhism by Akey C. F. Hung
Thoughts on the Human Genome Project and Maryland by Kathleen Kennedy
Townsend The Human Genome Project: Reaching Minority Communities in
Maryland, A Report of Results of the Conference Evaluation Study prepared
by the Survey Research Center The Human Genome Project and Minority
Communities: The Importance of Dialogue and Access to Information by
Raymond A. Zilinskas and Peter J. Balint