Living in My Afterlife
An invisible disability and health odyssey affecting millions
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After three months in a hospital, two years later, and all of the doctors' fruitless, "recommendations," a sixty-nine-year-old patient comes to the fateful, conclusion that they have a dehumanizing, incurable disease. The patient fears surviving his horror story with little relief, and the lack of an alternative would be cruel and unusual punishment. This story is not rare. But it's a horror story of protocol, mixed with the confusion of a competing and counterintuitive medical system. Meanwhile, millions suffer these almost mystifying ailments hiding under the "invisible disease" umbrellas of...
After three months in a hospital, two years later, and all of the doctors' fruitless, "recommendations," a sixty-nine-year-old patient comes to the fateful, conclusion that they have a dehumanizing, incurable disease. The patient fears surviving his horror story with little relief, and the lack of an alternative would be cruel and unusual punishment. This story is not rare. But it's a horror story of protocol, mixed with the confusion of a competing and counterintuitive medical system. Meanwhile, millions suffer these almost mystifying ailments hiding under the "invisible disease" umbrellas of Neuropathy and Dysautonomia; their lives overshadowed with constant pain, discomfort, and more; with the magnitude of Autoimmune diseases to be the next "cancer." An expose of injustice and a powerful argument for universal as opposed to mercenarily profit-driven health care, where the patient is at the mercy of a cruelly expensive, discriminating - and inadequate - medical system. It's time to treat healthcare as a human right, including the right to die as well as live. Living in My Afterlife is Robert's unflinching memoir tracking his descent into hell and his determination to "shuffle off this mortal coil" without sacrificing a death with dignity. What distinguishes Robert's story is the honesty and savage wit he brings to his heart-wrenching situation, sharing the hilarious with the horrendous; the pathetic with the sad. This provocative memoir of that experience with some revealing and controversial observations, will leave you rethinking your assumptions about medicine, what it means to be human, and the nature of living on. Above all, this is a remarkable journey in courage that millions unsuspectingly encounter, endure, and, for which, deserve recognition.
