Dismantling the Disability
My Uphill Battle with Friedreich's Ataxia
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A desire to belong in a world that poses challenge after challenge has driven Erin K. Pieper to have to be more patient than she ever thought would be necessary. To have to be understanding, and to not only accept but integrate physical limitations as part of her everyday life. Twelve years after her initial diagnosis of a rare and little-known disease called Friedreich's Ataxia, Erin shares her struggles in navigating the world not only with this degenerative disease, but also while being a single mother. Erin shares her life story while unveiling her vulnerable and kind heart. She shares the...
A desire to belong in a world that poses challenge after challenge has driven Erin K. Pieper to have to be more patient than she ever thought would be necessary. To have to be understanding, and to not only accept but integrate physical limitations as part of her everyday life. Twelve years after her initial diagnosis of a rare and little-known disease called Friedreich's Ataxia, Erin shares her struggles in navigating the world not only with this degenerative disease, but also while being a single mother. Erin shares her life story while unveiling her vulnerable and kind heart. She shares the raw and honest truth of her struggles while systematically informing us all on such a rare disease, giving voice to the voiceless. While she educates, she emotes. She advocates. Her memoir evokes such empathy for the disabled community as well as single, struggling mothers everywhere. You'll laugh. You'll cry. And you'll surely open your mind to new and creative possibilities for how the world could be, if we made it more accessible to the least able-bodied among us.
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