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imperfectandwithlimiteddata(Ng,Murray,Levy,&Venter,2009). Theabovescenarioraisesmanyquestionsfortoday'shealth-carec- sumers. For example, for whom is this information applicable, and for whatpopulationsorsubpopulationsisitnot?Underwhatcircumstances might this information be useful, and when should it be disregarded as irrelevant?Andperhapsmostimportantly,what,ifanything,canbedone inlightofinformationaboutpersonalgeneticrisktoeffectivelylowerthe oddsofbecomingsickandraisetheoddsofstayinghealthy? vii viii PREFACE Becausetheprevalenceofmostdiseasesvariesasafunctionofage, gender, race/ethnicity,…mehr

Produktbeschreibung
imperfectandwithlimiteddata(Ng,Murray,Levy,&Venter,2009). Theabovescenarioraisesmanyquestionsfortoday'shealth-carec- sumers. For example, for whom is this information applicable, and for whatpopulationsorsubpopulationsisitnot?Underwhatcircumstances might this information be useful, and when should it be disregarded as irrelevant?Andperhapsmostimportantly,what,ifanything,canbedone inlightofinformationaboutpersonalgeneticrisktoeffectivelylowerthe oddsofbecomingsickandraisetheoddsofstayinghealthy? vii viii PREFACE Becausetheprevalenceofmostdiseasesvariesasafunctionofage, gender, race/ethnicity, and other personal characteristics, answers to these questions are complex and many are just beginning to be und- stood(Khouryetal.,2009).Someexpertshaveconcludedthattheanswers tosuchquestionsremainoutofreachatthepresenttimeandmayc- tinue to be elusive for another 5-10 years (Frazer, Murray, Schork, & Topol,2009).Yet,twenty-?rstcenturyhealth-careconsumers,providers, and policy makers face these choices now about incorporating personal genetic information into health management and often do so without a complete and accurate understanding of the potential impact of their decisionsonmultiplelevels(Carlson,2009).

Dieser Download kann aus rechtlichen Gründen nur mit Rechnungsadresse in A, B, BG, CY, CZ, D, DK, EW, E, FIN, F, GB, GR, HR, H, IRL, I, LT, L, LR, M, NL, PL, P, R, S, SLO, SK ausgeliefert werden.

  • Produktdetails
  • Verlag: Springer-Verlag GmbH
  • Erscheinungstermin: 12.08.2010
  • Englisch
  • ISBN-13: 9781441958006
  • Artikelnr.: 37351947
Autorenporträt
Kenneth P. Tercyak, PhD is an associate professor in the Division of Health Outcomes and Health Behaviors of the Department of Oncology and in Pediatrics at the Georgetown University Medical Center in Washington, DC. He received his bachelor of arts degree in psychology from the University of Pennsylvania, and doctor of philosophy in clinical psychology from the University of Florida's College of Public Health and Health Professions. Dr. Tercyak's research has focused on cancer prevention and control among children, adolescents, and families. This includes investigations of the social and behavioral aspects of genetic testing for hereditary cancer syndromes among parents, developing and testing strategies for informed decision making and communication support in cancer genetics, and evaluating long-term outcomes among children growing-up in environments affected by familial cancer. Dr. Tercyak's other investigations have included a focus on biopsychosocial influences on youth smoking adoption, pediatric cancer survivorship, adolescent health promotion, and predictive testing for common disease risk. He has received continuous funding by the National Institutes of Health since 1998, including a National Research Service Award and Research Career Development Award from the National Cancer Institute, and funding from the National Human Genome Research Institute's Ethical, Legal, and Social Implications research program and the Division of Cancer Control and Population Sciences at the National Cancer Institute. Dr. Tercyak's scholarly contributions consist of more than 75 journal articles and book chapters. He has delivered invited presentations at a number of scientific organizations, including the American Society of Human Genetics, the Dana-Farber Cancer Institute, and St. Jude Children's Research Hospital. Dr. Tercyak is a Full Member of the Division of Population Sciences and the Jess and Mildred Fisher Center for Familial Cancer Research at the Lombardi Comprehensive Cancer Center at Georgetown. He is also a member of the Behavioral Medicine Study Section of the National Institutes of Health, and former member of the psychosocial peer review committees of the American Cancer Society and Susan G. Komen for the Cure Foundation; he has served as a grant reviewer for other National Institutes of Health study sections and special emphasis panels and international research organizations as well. Dr. Tercyak is a reviewer for a number of professional journals. Currently, he is serving a term as Associate Editor for prevention science at the Journal of Pediatric Psychology and is a member of the incoming editorial board at Health Psychology.
Inhaltsangabe
The New Era of Genomics: Childhood and Society Revisited.- Key Concepts in Human Genomics and Molecular Biology.- Key Concepts in Human Genomics and Psychology.- Understanding Childhood Gene, Environment, and Gene x Environment Interaction Effects.- Goals, Process, and Content of Genetic Counseling: Applications to Children, Adolescents, and Their Families.- Genomics and the Family: Integrative Frameworks.- Potential Impact of Genomic Information on Parent-Child Relationships.- Potential Impact of Genomic Information on Childhood Sibling Relationships.- Family Communication of Genomic Information.- Developmental Perspectives on Health and Risk Communication: Theories and Applied Methodologies for Genomics.- Prenatal Diagnosis and Carrier Screening.- Single Gene Disorders: Cystic Fibrosis, Sickle Cell Disease, Duchenne's Muscular Dystrophy and Others.- Cancer.- Diabetes.- Cardiovascular Disease.- Obesity.- Tobacco, Alcohol, and Other Risk Behaviors .- Childhood Psychiatric and Neurodevelopmental Genomics.- Bioethical Perspectives on Pediatric Gene Therapy and Pharmacogenomics.- Informed Consent and the Protection of Human Subjects in Genomic Research with Children, Adolescents, and Families .- Ethical, Legal, and Social Issues in the Genetic Testing of Minors.- National Policy Perspectives on Pediatric Genetic Testing.- Privacy and Insurance Issues in Pediatric Genetic Testing.- Training, Practice, and Collaboration: New Opportunities for Pediatric Psychology and Genomic Medicine.-Prevention and Control: Genes, Behavior, and Beyond.
Rezensionen
From the reviews: "This book not only aims to provide a review of the state of the science, but also to explore the larger psychosocial and ethical issues inherent on this new frontier. It is appropriate for clinical and health psychologists, psychiatrists, genetic counselors, and others interested in the field. ... This is a comprehensive book on a difficult, but important topic. ... The integration of the genetic and disease models with psychosocial challenges is a particularly strong point for the book." (Christopher J. Graver, Doody's Review Service, January, 2011)