Elizabeth Morrow, Annette Boaz, Sally Brearley, Fiona Mary Ross

Handbook of Service User Involvement in Nursing and Healthcare Research (eBook, ePUB)

• Format: ePub

Produktbeschreibung

This book fills an important niche in the market providing practical expert advice on the involvement of service users - patients, carers and the public - in nursing and healthcare research. An invaluable guide for anyone working or involved in nursing and healthcare research, this book provides a step-by-step guide to the principles and process of involvement, including understanding the rationale for involvement, designing involvement, working with service users, and evaluating what has been achieved. With illustrations, worked examples and tool sheets throughout, this evidence-based guide uses real life examples from recent research studies in health and social care research, thus relating theory to practice in a meaningful way. The Handbook of Service User Involvement in Nursing & Healthcare Research introduces a wide range of key issues, including: * Why? Why should researchers involve service users? * How? How can researchers and service users work together successfully and productively? * Who? Who chooses to become involved in research? How are issues of representation and diversity addressed? * When? At what stage should service users be involved in the research process?

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Produktdetails

• Verlag: John Wiley & Sons
• Seitenzahl: 224
• Erscheinungstermin: 24. Oktober 2011
• Englisch
• ISBN-13: 9781444347036
• Artikelnr.: 38310152

Autorenporträt

Elizabeth Morrow is Research Associate at the National Nursing Research Unit, Kings College London Dr Annette Boaz is Lecturer in Translational Research at the Division of Health and Social Care Research, King's College, London Sally Brearley is Chair of Health Link, (a not-for-profit organisation aimed at strengthening public influence on health (www.health-link,org.uk), and was former Chair of The Patients Forum (www.thepatientsforum.org.uk) Professor Fiona Mary Ross is Dean of Faculty of Health and Social Care Sciences, Kingston University and St George's, University of London

Inhaltsangabe

Contributors viii About the authors x Preface xii Structure of the book xv
Acknowledgements xviii Part I Preparing 1 1 Perspectives and expectations 3
Approaching service user involvement 4 Political and research contexts of
involvement 7 Historical roots and social movements 8 Perspectives of
service user involvement 12 What is known about the impact of involvement?
14 Current challenges 15 2 Concepts 18 Service users 19 Involvement 21
Representation 22 Experiential knowledge 24 Empowerment 25 Participation 26
Models of involvement 27 A theoretical framework for approaching service
user involvement in research 30 3 Designing involvement 36 Deciding who to
involve 37 Building in opportunities for involvement 40 Research methods
and approaches to involvement 42 Planning involvement 48 Payments 48
Research ethics and governance 54 4 Working relationships 59 Making
connections 60 Working environments 61 Roles and responsibilities 66 Legal
and ethical issues 67 Training and support 68 Communication 70 Feedback and
reflection 72 Embedding service user involvement 72 Part II Learning 77 5
Patients, clients and carers 79 Patients who are receiving health care 80
People who are very sick 83 People with rare clinical conditions 85 People
who find it difficult to access services 85 People who do not have the
capacity to consent 87 Carers 89 6 Involvement over the life course 93
Children and their parents 93 School-age children 97 Young people 100
Adults 102 Older people 103 7 Seldom-heard groups 106 Involving
seldom-heard groups 107 People with physical disabilities 108 The deaf and
people who are hard of hearing 110 People who are blind or partially
sighted 111 People with learning disabilities 111 People with degenerative
cognitive impairment 113 People with mental health problems 113 Black and
minority ethnic groups 116 8 Service user-led research 120 Personal health
research 121 Volunteer networks 121 Service user-led organisations 123
Charities and not-for-profit organisations 125 Experienced service user
representatives 127 Academic service user researchers 128 Part III
Evaluating 133 9 Quality 135 Indicators of successful involvement 136
Documenting service user involvement work 137 Using reflective techniques
139 Reflexivity and service user involvement 142 Quality experiences of
involvement 143 Quality environments for involvement 146 10 Impact 151 Why
we need to know about impact 152 Designing an assessment of impact 153
Recognising impact 154 Recording impact 157 Reporting impact 161 11
International perspectives 165 Europe 166 The USA 168 Canada 169 Australia
and New Zealand 170 Developing countries 172 12 Conclusion 176 Summary
conclusions 177 Service user involvement enhancing evidence-based practice
178 Enriching professional education 179 Teaching service user involvement
in research 180 Developing professional roles 184 Securing service user's
commitment to involvement 185 Further reading 188 Web-based resources 189
Index 191