Ignasi Clemente

Uncertain Futures (eBook, PDF)

Communication and Culture in Childhood Cancer Treatment

• Format: PDF

Produktbeschreibung

This book examines children and young people's attempts to participate in conversations about their own treatment throughout uncertain cancer trajectories, including the events leading up to diagnosis, treatment, remission, relapse, and cure or death. * Clearly and compellingly written, Clemente relies on a new multi-layered method to identify six cancer communication strategies * Illustrates that communication is central to how children, parents, and healthcare professionals constitute, influence, and make sense of the social worlds they inhabit--or that they want to inhabit * Provides ethnographic case studies of childhood cancer patients in Spain, using children's own words * Examines the challenges of how to talk to and how to encourage patients' involvement in reatment discussions * In his critique of the "telling" versus "not telling" debates, Clemente argues that communication should be adjusted to the children's own needs, and that children's own questions can indicate how much or little they want to be involved Uncertain Futures is the winner of the 15th Annual Modest Reixach Prize.

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Produktdetails

• Verlag: John Wiley & Sons
• Seitenzahl: 248
• Erscheinungstermin: 29. Juli 2015
• Englisch
• ISBN-13: 9781118909751
• Artikelnr.: 43589706

Autorenporträt

Ignasi Clemente is Assistant Professor in the Department of Anthropology at Hunter College, CUNY, USA. His research interests include sociocultural and communicative aspects of pain and suffering, childhood studies, and embodied communication. His research on chronically ill children has been published in journals including Social Science and Medicine, Sociology of Health and Illness, and Communication and Medicine. Among others, he has contributed to the Oxford Textbook of Paediatric Pain (2013), the Handbook of Conversation Analysis (Wiley-Blackwell, 2013), Healthcare Settings: Policy, Participation and New Technologies (Wiley-Blackwell, 2010), and the Blackwell Guide to Research Methods in Bilingualism (Blackwell, 2008).

Inhaltsangabe

Series Preface ix Acknowledgments xii Preface xiv 1. Children:
Contributions to Communication and Illness 1 Alternatives to Speaking 5
Disclosure as a Dynamic and Heterogeneous Process 7 Disclosure to Children
with Cancer 10 Problematizing Participation 13 Uncertainty and the Practice
of Optimism 21 Multiple Uncertainties 21 Hierarchically Organized
Uncertainties 23 Variable Uncertainties 23 Practicing Hope and Optimism 25
Ethnography and Conversation Analysis 26 Plan of the Book 31 2. A
Linguistic Anthropologist in a Pediatric Cancer Unit 33 Culture and
Disclosure Practices in Catalonia 34 Fieldwork with Children 38 Contexts of
Children's Questions 42 Investigating Avoidance 44 Multiple Ways of Talking
about Cancer 47 3. Living and Dealing with Cancer 49 Focusing on Treatment
51 Guessing 55 Estar baixet (Having Low Blood Cell Counts) 56 Les llagues
(Mouth Sores) 57 La febre (Fever and Infections) 58 Being Together 60
Acompanyar (Being at the Patient's Side) 61 Menjar (Eating) 63 Fer una
visita (Visiting) 64 Talking Privately 67 Uncertainties of Treatment 71 4.
Co?]constructing Uncertainty 74 Questions and Answers 76 Uncertainty and
the Topic of Questions 79 Contingent Answers 80 Contingent Questions 86
Uncertainty and the Action of Questions 88 Answers that Lead to Subsequent
Actions 90 Avoiding Answers and Avoiding Silence 93 Stepping into the
Uncertain Future One Turn at a Time 100 5. Engaging in Communication at
Catalonia Hospital 102 Learning the Diagnosis 103 L'entrevista (The
Treatment Interview) 109 "And When Will I Be Completely Cured?" 111 Six
Communication Strategies 127 6. Patient Pressure and Medical Authority 129
Everyday Life in Treatment 130 "How Many Chemos Do I Have Left?" 133
Seeking Answers Without Challenging Medical Authority 151 7. The Limits of
Optimism at the End of Treatment 153 Remission 154 Relapse 159 Negotiating
Death 161 "Is the Day of the Autotransplant Going to Be Delayed?" 168
Optimistic Collusion 178 8. Conclusion 180 Appendix A: Profiles of Patients
189 Children (ages 3-6) 189 Young people (ages 11-18) 190 Appendix B:
Transcription Conventions 193 References 197 Index 214

Rezensionen

"Clemente opens our minds and hearts to the everyday lives of children with cancer, their parents and clinicians as they interact with one another, indeed as they carry on, in the face of numerous uncertainties."

Myra Bluebond-Langner, University College, London and Rutgers University

"Ignasi Clemente's book deserves to be read by all who are concerned with the state of health care communication, whether involving cancer or other serious illness, patients who are children or adults, and communications in hospitals, clinics or other medical settings."

Douglas Maynard, University of Wisconsin

"Uncertain Futures insightfully explores the delicate balance between silence and discussion, and sheds light on how the illness extends beyond the patient as parents rearrange their lives to love and care for their children in extremely difficult circumstances."

Marjorie Goodwin, University of California, Los Angeles