The Handbook of Ethical Research with Ethnocultural Populations and Communities
What steps can be taken to incorporate a cultural perspective to
the evaluation of research risks and benefits? How can
investigators develop and implement respectful informed consent
procedures in diverse cultural and language communities? What are
ethical pitfalls and successful approaches to engaging in community
and participant consultation? The Handbook of Ethical Research with
Ethnocultural Populations and Communities, edited by Joseph E.
Trimble and Celia B. Fisher, addresses these and other key
questions in the first major work to focus specifically on ethical
issues involving work with ethnocultural populations. Filling gaps
and questions left unanswered by general rules of scientific
conduct such as those embodied in federal regulations and
professional codes, this Handbook will help guide ethical decision
making for social and behavioral science research with
multicultural groups for years to come. Key Features: Brings
together for the first time a multidisciplinary blend of national
leaders who specialize in the area of conducting research with
ethnocultural populations Addresses existing issues at
methodological, procedural, and conceptual levels for the
responsible conduct of research in the field Incorporates as
background a summary of leading research and scholarship on various
topics framed within the authors' personal successes,
challenges, and failures in the dynamic process of creating a
multicultural research ethic Includes real-world case examples to
illustrate significant ethical principles in the research venture
more concretely The Handbook is designed for graduate and advanced
undergraduate students in Psychology and will also be valuable for
social and medical science researchers and institutional review
boards. This book will also be of interest to ethicists and
bioethicists, policy makers, and foundations that fund research
involving multicultural populations. .
Main description:
What steps can be taken to incorporate a cultural perspective to
the evaluation of research risks and benefits? How can
investigators develop and implement respectful informed consent
procedures in diverse cultural and language communities? What are
ethical pitfalls and successful approaches to engaging in community
and participant consultation? The Handbook of Ethical Research with
Ethnocultural Populations and Communities, edited by Joseph E.
Trimble and Celia B. Fisher, addresses these and other key
questions in the first major work to focus specifically on ethical
issues involving work with ethnocultural populations. Filling gaps
and questions left unanswered by general rules of scientific
conduct such as those embodied in federal regulations and
professional codes, this Handbook will help guide ethical decision
making for social and behavioral science research with
multicultural groups for years to come.
Key Features:
Brings together for the first time a multidisciplinary blend of
national leaders who specialize in the area of conducting research
with ethnocultural populations
Addresses existing issues at methodological, procedural, and
conceptual levels for the responsible conduct of research in the
field
Incorporates as background a summary of leading research and
scholarship on various topics framed within the authors'
personal successes, challenges, and failures in the dynamic process
of creating a multicultural research ethic
Includes real-world case examples to illustrate significant ethical
principles in the research venture more concretely
The Handbook is designed for graduate and advanced undergraduate
students in Psychology and will also be valuable for social and
medical science researchers and institutional review boards. This
book will also be of interest to ethicists and bioethicists, policy
makers, and foundations that fund research involving multicultural
populations.
.
Review quote:
... A timely topic . . . [t]his might be an excellent book as a
text for a graduate class. All APA-approved clinical and counseling
programs have to teach a class on ethics and this would be a good
reader, or supplementary reader, for such a class.
. Ana Mari Cauce
...
In recent years, there has been much criticism in the literature
aboutthe development and quality of research in the area of the
psychological study of ethnic minority issues. This criticism,
whether real or imagined, has nevertheless influenced the kind of
research that has emerged during the past few years. This
Handbook,edited by Joseph Trimble and Celia Fisher, is, in my
opinion, an outstanding response to this criticism. They have
provided a book that clearly articulates an important ethical
imperative: As the faces of America changes, so too must we as
researchers transform ourresearch designs to be more culturally
inclusive. This Handbook pokes, prods, and pushes its reader to
shift research paradigms,creating for some a dialectical tension
that challenges preconceivednotions of ethnic minority research.
Imagine, as Trimble and Fisher point out, that 'soon the people
of America will be better described as America's People of
Color.' If such is the case, then those of uswho choose to
engage in this research must be prepared to acknowledge and
understand that as scholars we must lead by example. ThisHandbook
provides the reader with all of the tools to do so and mustbe taken
seriously by all thosewho want to participate in the
conversation.
. Donald B. Pope-Davis, Ph.D.(20050705)
Table of contents:
Acknowledgements
Preface - Richard Suinn
Introduction: Our Shared Journey: Lessons from the Past to Protect
the Future - Joseph E. Trimble and Celia B. Fisher
PART I. FOUNDATIONS OF ETHNOCULTURAL RESEARCH AND RESEARCH
ETHICS
1. A Goodness-of-Fit Ethic for Multicultural Research - Celia B.
Fisher and Kathleen Ragsdale
2. Scientist-Community Collaborations: A Dynamic Tension Between
Rights and Responsibilities - John Fantuzzo, Christine McWayne, and
Stephanie Childs
3. First, Do No Harm: Culturally Centered Measurement for Early
Intervention - Nancy Busch-Rossnagel
PART II. RESEARCH ETHICS CHALLENGES INVOLVING DIVERSE ETHNOCULTURAL
GROUPS
4. Addressing Health Disparities Through Relational Ethics: An
Approach to Increasing African American Participation in Biomedical
and Health Research - Scyatta A. Wallace
5. In Their Own Voices: American Indian Decisions to Participate in
Health Research - Tim D. Noe, Spero M. Manson, Calvin Croy, Helen
McGough, Jeffrey A. Henderson, and Dedra S. Buchwald
6. I Wonder, Why Would You Do It That Way? Ethical Dilemmas in
Doing Participatory Research With Alaska Native Communities -
Gerald V. Mohatt and Lisa Thomas
7. Ethical Conduct of Research With Asian and Pacific Islander
American Populations - Jean Lau Chin, Jeffery Scott Mio, and Gayle
Y. Iwamasa
8. Ethical Community-Based Research With Hispanic or Latina(o)
Populations: Balancing Research Rigor and Cultural Responsiveness -
Felipe Gonzalez Castro, Rebeca Rios, and Harry Montoya
9. Ethical Issues in Research With Immigrants and Refugees - Dina
Birman
PART III. SOCIALLY SENSITIVE RESEARCH INVOLVING ETHNOCULTURAL
FAMILIES AND COMMUNITIES
10. Ethical Research With Ethnic Minorities in the Child Welfare
System - Katherine Ann Gilda Elliott and Anthony Urquiza
11. With All Due Respect: Ethical Issues in the Study of Vulnerable
Adolescents - Ana Marie Cauce and Richard H. Nobles
12. Ethical Research Dilemmas With Minority Elders - Susan Krauss
Whitbourne, Joshua R. Bringle, Barbara W. K. Yee, David Chiriboga,
and Keith Whitfield
13. Changing Models of Research Ethics in Prevention Research
Within Ethnic Communities - Fred Beauvais
14. Ethnographic Research on Drugs and HIV/AIDS in Ethnocultural
Communities - Merrill Singer and Delia Easton
PART IV. THE RIGHTS AND RESPONSIBILITIES OF INDIVIDUALS,
COMMUNITIES, AND INSTITUTIONS
15. Safeguarding Sacred Lives: The Ethical Use of Archival Data for
the Study of Diverse Lives - Copeland H. Young and Monica
Brooker
16. Ethical Issues When White Researchers Study ALANA and Immigrant
People and Communities - Janet E. Helms, Kevin T. Henze, Jackquelyn
Mascher, and Anmol Satiani
17. Coda: The Virtuous and Responsible Researcher in Another
Culture - Joseph E. Trimble and Gerald V. Mohatt
Name Index
Subject Index
About the Editors
About the Contributors
In recent years, there has been much criticism in the literature about the development and quality of research in the area of the psychological study of ethnic minority issues. This criticism, whether real or imagined, has nevertheless influenced the kind of research that has emerged during the past few years. This Handbook, edited by Joseph Trimble and Celia Fisher, is, in my opinion, an outstanding response to this criticism. They have provided a book that clearly articulates an important ethical imperative: As the faces of America changes, so too must we as researchers transform our research designs to be more culturally inclusive. This Handbook pokes, prods, and pushes its reader to shift research paradigms, creating for some a dialectical tension that challenges preconceived notions of ethnic minority research. Imagine, as Trimble and Fisher point out, that 'soon the people of America will be better described as America's People of Color.' If such is the case, then those of us who choose to engage in this research must be prepared to acknowledge and understand that as scholars we must lead by example. This Handbook provides the reader with all of the tools to do so and must be taken seriously by all those who want to participate in the conversation.
Joseph E. Trimble, Ph.D.: Joseph E. Trimble (PhD, University of Oklahoma, Institute of Group Relations, 1969) is a Distinguished University Professor and member of the Department of Psychology, the Woodring College of Education, and a Research Associate in the Center for Cross-Cultural Research at Western Washington University in Bellingham, Washington. Also, he is a Senior Scholar at the Tri-Ethnic Center for Prevention Research and an Adjunct Professor of Psychology at Colorado State University and a Research Associate for the National Center for American Indian and Alaska Native Mental Health Research at the University of Colorado Health Sciences Center. From 2000-2001, he was a Fellow at the Radcliffe Institute for Advanced Studies at Harvard University.
Inhaltsangabe
Acknowledgements Preface - Richard Suinn Introduction: Our Shared Journey: Lessons from the Past to Protect the Future - Joseph E. Trimble and Celia B. Fisher PART I. FOUNDATIONS OF ETHNOCULTURAL RESEARCH AND RESEARCH ETHICS 1. A Goodness-of-Fit Ethic for Multicultural Research - Celia B. Fisher and Kathleen Ragsdale 2. Scientist-Community Collaborations: A Dynamic Tension Between Rights and Responsibilities - John Fantuzzo, Christine McWayne, and Stephanie Childs 3. First, Do No Harm: Culturally Centered Measurement for Early Intervention - Nancy Busch-Rossnagel PART II. RESEARCH ETHICS CHALLENGES INVOLVING DIVERSE ETHNOCULTURAL GROUPS 4. Addressing Health Disparities Through Relational Ethics: An Approach to Increasing African American Participation in Biomedical and Health Research - Scyatta A. Wallace 5. In Their Own Voices: American Indian Decisions to Participate in Health Research - Tim D. Noe, Spero M. Manson, Calvin Croy, Helen McGough, Jeffrey A. Henderson, and Dedra S. Buchwald 6. "I Wonder, Why Would You Do It That Way?" Ethical Dilemmas in Doing Participatory Research With Alaska Native Communities - Gerald V. Mohatt and Lisa Thomas 7. Ethical Conduct of Research With Asian and Pacific Islander American Populations - Jean Lau Chin, Jeffery Scott Mio, and Gayle Y. Iwamasa 8. Ethical Community-Based Research With Hispanic or Latina(o) Populations: Balancing Research Rigor and Cultural Responsiveness - Felipe Gonzalez Castro, Rebeca Rios, and Harry Montoya 9. Ethical Issues in Research With Immigrants and Refugees - Dina Birman PART III. SOCIALLY SENSITIVE RESEARCH INVOLVING ETHNOCULTURAL FAMILIES AND COMMUNITIES 10. Ethical Research With Ethnic Minorities in the Child Welfare System - Katherine Ann Gilda Elliott and Anthony Urquiza 11. With All Due Respect: Ethical Issues in the Study of Vulnerable Adolescents - Ana Marie Cauce and Richard H. Nobles 12. Ethical Research Dilemmas With Minority Elders - Susan Krauss Whitbourne, Joshua R. Bringle, Barbara W. K. Yee, David Chiriboga, and Keith Whitfield 13. Changing Models of Research Ethics in Prevention Research Within Ethnic Communities - Fred Beauvais 14. Ethnographic Research on Drugs and HIV/AIDS in Ethnocultural Communities - Merrill Singer and Delia Easton PART IV. THE RIGHTS AND RESPONSIBILITIES OF INDIVIDUALS, COMMUNITIES, AND INSTITUTIONS 15. Safeguarding Sacred Lives: The Ethical Use of Archival Data for the Study of Diverse Lives - Copeland H. Young and Monica Brooker 16. Ethical Issues When White Researchers Study ALANA and Immigrant People and Communities - Janet E. Helms, Kevin T. Henze, Jackquelyn Mascher, and Anmol Satiani 17. Coda: The Virtuous and Responsible Researcher in Another Culture - Joseph E. Trimble and Gerald V. Mohatt Name Index Subject Index About the Editors About the Contributors
